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Reducing the Impact of Dementia in America

Author: National Academies of Sciences Engineering and Medicine

Publisher:

Published: 2022-04-26

Total Pages:

ISBN-13: 9780309495035

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As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Book Synopsis Reducing the Impact of Dementia in America by : National Academies of Sciences Engineering and Medicine

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

End of Life: Helping with Comfort and Care

Author: U.S. Department of Health and Human Services

Publisher: Lulu.com

Published: 2019-04-13

Total Pages: 78

ISBN-13: 0359588239

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At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.

Book Synopsis End of Life: Helping with Comfort and Care by : U.S. Department of Health and Human Services

Download or read book End of Life: Helping with Comfort and Care written by U.S. Department of Health and Human Services and published by Lulu.com. This book was released on 2019-04-13 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.

Dementia Reconsidered Revisited: The Person Still Comes First

Author: Tom Kitwood

Publisher: McGraw-Hill Education (UK)

Published: 2019-01-07

Total Pages: 234

ISBN-13: 0335248039

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The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK

Book Synopsis Dementia Reconsidered Revisited: The Person Still Comes First by : Tom Kitwood

Download or read book Dementia Reconsidered Revisited: The Person Still Comes First written by Tom Kitwood and published by McGraw-Hill Education (UK). This book was released on 2019-01-07 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK

Palliative Care for Advanced Alzheimer's and Dementia

Author: Jennifer V. Long, CRNA, CRNP, MS

Publisher: Springer Publishing Company

Published: 2010-07-23

Total Pages: 350

ISBN-13: 0826106765

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2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life

Book Synopsis Palliative Care for Advanced Alzheimer's and Dementia by : Jennifer V. Long, CRNA, CRNP, MS

Download or read book Palliative Care for Advanced Alzheimer's and Dementia written by Jennifer V. Long, CRNA, CRNP, MS and published by Springer Publishing Company. This book was released on 2010-07-23 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life

Making Tough Decisions about End-of-Life Care in Dementia

Author: Anne Kenny

Publisher: JHU Press

Published: 2018-09-03

Total Pages: 232

ISBN-13: 1421426684

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Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

Book Synopsis Making Tough Decisions about End-of-Life Care in Dementia by : Anne Kenny

Download or read book Making Tough Decisions about End-of-Life Care in Dementia written by Anne Kenny and published by JHU Press. This book was released on 2018-09-03 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

Supportive Care for the Person with Dementia

Author: Julian Hughes

Publisher: Oxford University Press

Published: 2010

Total Pages: 330

ISBN-13: 0199554137

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Supportive Care for the person with dementia provides a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia.

Book Synopsis Supportive Care for the Person with Dementia by : Julian Hughes

Download or read book Supportive Care for the Person with Dementia written by Julian Hughes and published by Oxford University Press. This book was released on 2010 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supportive Care for the person with dementia provides a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia.

Comforting Touch in Dementia and End of Life Care

Author: Barbara Goldschmidt

Publisher: Singing Dragon

Published: 2011-11-15

Total Pages: 208

ISBN-13: 0857010484

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*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards* The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction. This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.

Book Synopsis Comforting Touch in Dementia and End of Life Care by : Barbara Goldschmidt

Download or read book Comforting Touch in Dementia and End of Life Care written by Barbara Goldschmidt and published by Singing Dragon. This book was released on 2011-11-15 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: *Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards* The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction. This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.

Essentials of Dementia

Author: Dr Shibley Rahman

Publisher: Jessica Kingsley Publishers

Published: 2018-01-18

Total Pages: 240

ISBN-13: 1784507547

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To provide high quality dementia care, professionals need to be both knowledgeable about dementia and skilled in the provision of care. This book is an introductory reference guide that will help students, professionals and practitioners develop their skills and expertise to better respond to the needs of people with dementia. It sets out information and advice on essential topics, research and evidence-based practice within dementia care in a clear, sensible way. Based on the standard course structure for higher and further dementia education, this wide-ranging textbook covers topics including dementia diagnosis, person-centred care and law, ethics and safeguarding. The new go-to book for the dementia curriculum, it is an invaluable tool for anyone wishing to improve the required core skills and values needed to care for those affected by dementia.

Book Synopsis Essentials of Dementia by : Dr Shibley Rahman

Download or read book Essentials of Dementia written by Dr Shibley Rahman and published by Jessica Kingsley Publishers. This book was released on 2018-01-18 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: To provide high quality dementia care, professionals need to be both knowledgeable about dementia and skilled in the provision of care. This book is an introductory reference guide that will help students, professionals and practitioners develop their skills and expertise to better respond to the needs of people with dementia. It sets out information and advice on essential topics, research and evidence-based practice within dementia care in a clear, sensible way. Based on the standard course structure for higher and further dementia education, this wide-ranging textbook covers topics including dementia diagnosis, person-centred care and law, ethics and safeguarding. The new go-to book for the dementia curriculum, it is an invaluable tool for anyone wishing to improve the required core skills and values needed to care for those affected by dementia.

Neuropalliative Care

Author: Claire J. Creutzfeldt

Publisher: Springer

Published: 2018-10-01

Total Pages: 312

ISBN-13: 3319932152

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This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

Book Synopsis Neuropalliative Care by : Claire J. Creutzfeldt

Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

The End-of-life Namaste Care Program for People with Dementia

Author: Joyce Simard

Publisher: Gwasg y Bwthyn

Published: 2013

Total Pages: 0

ISBN-13: 9781938870026

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Offers simple and practical ways for direct care staff to provide holistic end-of-life care for people with advanced dementia. --Publisher.

Book Synopsis The End-of-life Namaste Care Program for People with Dementia by : Joyce Simard

Download or read book The End-of-life Namaste Care Program for People with Dementia written by Joyce Simard and published by Gwasg y Bwthyn. This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers simple and practical ways for direct care staff to provide holistic end-of-life care for people with advanced dementia. --Publisher.